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Look What My Dad Made

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October 17, 2008

This Is a Girl

This is a girl.

who wants to be a paramedic when she grows up.

I want to say she's more than just a girl. I want to say she's a princess, but then you'd get the wrong idea about her.

Why is it a Prince Among Men is all things good, noble, and strong, but a Princess Among Women is almost entirely opposite?

Sue me, Mattel. I need the publicity.

Kick-ass women should reclaim the princess title. Kathryn will be one of the first.

Not a regulation helmet.

This girl has an arm.

Actually she has two.

It smells bad.

leave-the-room bad

Until today, it had seen neither soap nor water for eight weeks.

May my calendar grant you inner peace.

It had not seen the sun, either.

There are few creatures that can survive eight weeks without sunlight. Those creatures probably smell bad, too.

It uses a little light to attract prey.

For eight weeks, that arm could not write. It could not do art projects. It could not play at recess. The only thing it could do was suffocate koalas in the middle of the night.

Something you can only dream of doing.

That didn't really make up for the other things.

The arm had some rough times.

Not cheap, either.

But those times are over now. The arm is free. And no matter what I said at the beginning, that arm smells like flowers.

No, it doesn't.

Which is just sentimental crap. It really smells bad.

October 13, 2008

A Voice from the Past TO SAVE THE FUTURE!

I found this in my wall. IN MY WALL.

Not a recommended building material.

It is a newspaper from 1920. It was holding up one of my windows. Don't ask what is holding up the window now, just be happy it's a mild October.

The newspaper is here to save the world.

Those crazy French! 

"...an invention which may revolutionize the process of motor combustion as it now exists and solve the problem of motor fuel resources which is daily growing more imminent.

"The wood-burning motor made a 3,200 mile tour of France at a cost of $14.50 instead of $120 as it would have been with a gasoline motor."

Earth, you are welcome.

September 25, 2008

She's Worn Orange, Yellow, Blue, Green, and Now...

I voted for black.
Red.

September 16, 2008

Open Call

I have a favor to ask. As we try to climb down off the mountain of hell which has grown around us (last night, our good friend Mr. Big Seizure returned after a month-long absence, and he met Mr. Broken and Twice-Reset Arm, and they did not get along very well at all), I am asking for your help.

Kathryn and I are going on a quest: A quest for luck. And we are collecting ideas about what people say brings it. Rabbit feet, four-leaf clovers, crickets--you name it, we want to know about it. The more obscure the better. Even if it's local to your area, tell us about it. Be as detailed as you can.

Luck can, of course, be as you define it. It doesn't even matter if you don't believe in it. Hell, I don't believe in it, but if nothing else, our quest will make us feel like we're doing something. We really need to do something.

Please email your ideas to lookydaddy (at) gmail (dot) com. Put "Luck" in the subject line.

Thanks.


August 21, 2008

The Best Place to Watch the Olympics

The best place to watch the Olympics is the isolation ward of the local hospital in Usti nad Labem, a town located between Prague and Dresden in much the same way your anus is located between your butt cheeks.

It was Sharon's fault I was in the hospital. It was not her fault I was sick, just that I was sick in the hospital. Before her intervention, I was sick at home. I had been sick at home for a week before the ambulance came, a week during which all of my insides had completely liquefied in an apparent attempt to pass efficiently, and sometimes involuntarily, out of my ass. I believe it was the involuntary part that made Sharon break her promise and tell her colleagues, who in turn called the ambulance, who in turn knocked on the door to our flat at 9 AM that morning while I was sitting on the toilet, quietly worried that I had just shat out my lungs.

I couldn't get up to unlock the door, and yelling "Hold on!" was out of the question since any such intake of breath would have caused even more of my insides to become my outsides, so I did nothing. Which was the wrong thing to do. The knocking turned to pounding and the pounding turned to louder pounding which soon became louder-pounding-with-yelling. Before long, so much noise was being made outside my door that when I did yell out, nobody heard it, which made it all the more tragic that the effort cost me my spleen, now floating like so much flotsam next to my lungs. Minutes later, the pounding and yelling was replaced by a key in a lock, and in seconds, the door opened and no less then ten people spilled into my flat. First were the paramedics, followed by the principal of Sharon's school, his entire English department, and then Sharon herself. I know this because our flat's bathroom was in a straight line with the front door and I had not bothered to shut the bathroom door. I had also not bothered to put on any clothes. Everyone stopped short when they saw me, and for a few moments the only sounds that could be heard were Sharon at the back of the group yelling, "I'm sorry! I'm sorry!" and me squirting what was left of my dignity out of my ass.

At this point in the story, with a hallway full of paramedics and half the teaching staff of Primary School #33, it's embarrassing to admit this was all for a case of food poisoning. Bad food poisoning, to be sure, but still just food poisoning. The brouhaha came as a result of a slip Sharon made when telling her coworkers about my illness. She said I caught it in Bulgaria. You see, the Czechs are a bit xenophobic when it comes to countries more easterly than theirs (a laughable trait, equivalent to an Alabaman warning you against traveling to Mississippi), so when she said I had been laid up for a week with some bug we brought back from Bulgaria, the teacher to whom she said it was on the phone to the Czech version of the CDC in seconds.

And that's how I spent the next two weeks locked down in an isolation ward with nothing to do but watch the Olympics.

This was 1994. It was the dead of winter. The Olympics were being held in Lillehammer, Norway, about a thousand kilometers from the Czech Republic. The still state-controlled Czech television stations had sent a camera to follow the action. One camera. Every day they moved the camera to a new event and simply let it roll. For one whole day of my medical incarceration, I watched skier after skier stop in front of that camera in what must have been the least exciting coverage of the biathlon ever.

It was sublime.

There was no artificial human drama, no attempt to deify the athletes. There were neither commercials nor commentators. There was just skiing and shooting. (That is, inexplicably, what the biathlon is. They ski a little, they shoot a little. It's not so much a sport as a survival skill. But watching it did lead me to wonder why rifles aren't added to more Olympic events. They'd sure as hell make the men's floor exercise a more compelling watch.)

Every day the camera was in a different place, pointed at a different event. Finding out where made waking up in that dismal place actually exciting. Sometimes the location of the camera was so obscure, it took me forever to figure out what I was seeing. One time I watched a bare snow drift for almost an hour before, in a flash of color, a single cross-country skier went past. I literally squealed with joy when I saw him. Or her. There was no way to tell.

When visitation hour came each day, the Olympics were all I could talk about. Er, yell about.  Visitation time at the isolation ward meant for one hour people were allowed to stand on a balcony outside my window, outside the whole building actually, and yell at me through the double-paned glass. It was February. In Eastern Europe. I didn't get a lot of visitors.

"Did you watch the Olympics today?" I would ask eagerly.

"What?"

"DID YOU WATCH THE OLYMPICS TODAY?"

"NO! I TOLD YOU! IT'S UNWATCHABLE!"

I felt sorry for my brothers on the outside.

Those outside the hospital did not see the Olympics as I did. Their lives were too busy to watch the games in this new and, I'm not afraid to say it, daring way. To experience the Olympics like me, they needed to stop for more than just the few moments that their busy schedule allowed. They needed to stop for hours. They needed to stop and empty themselves of all their cares, their responsibilities, their commitments, and most importantly, their internal organs. And I knew just the restaurant in Bulgaria to help them out with that last one. 

July 22, 2008

Sparky Sparky Boom Man

The neurologist came into Kathryn's hospital room and greeted us all: me, Sharon, Kathryn, Kathryn's webkinz, Kathryn's webkinz, and Kathryn's webkinz. Then she asked Sharon and me if we wanted to talk in the hallway. She had never asked this before, and I wondered why she was doing so now. For one thing, up to this point all of our conversations about her epilepsy had included Kathryn, and for another, Kathryn was busy watching back episodes of Avatar on the hospital TV, so our doctor could have easily stood in the middle of the room and announced she was the High Priestess of Synthar, Lord of the Demon Horde and Kathryn's seizures were actually a natural result of her on-going transition from seven-year-old girl to Demon Hordette and the most she would have gotten from Kathryn would have been a "Shh!" because Sozin's Comet was coming in just two days and Kathryn had some major catching up to do before it arrived. AIRBENDING SLICE!

In the hallway, the neurologist informed us of what Sharon posted here a few days ago: It's still Rolandic Epilepsy. (Somewhere along the way, the doctor stopped calling it "Benign" Rolandic Epilepsy, and I really wish she'd bring that first word back.) But the news our neurologist was most concerned about was the frequency of Kathryn's spikes as shown by the EEG. As Sharon wrote, in the same amount of time that most kids would have between three and four spikes, Kathryn was topping out between thirty and fifty. And that's on medicine. "Frankly," the doctor said, "I'm having a hard time reconciling the EEG results with what I see in your daughter." I pressed her to explain that and she replied, "Well, with so much activity in her brain, I wouldn't expect her to be so alert, so high-functioning."

"Ma'am," I replied, "If you visited our house for just a few hours, you'd be amazed that any of us are so high-functioning."

But it's true. Despite the virtual shower of sparks squirreling around Kathryn's brain at any (and every) given moment, she is still every bit the girl she's always been. I have no doubt if any of you frequent commenters to this site actually came here and met my oldest daughter, you'd turn and clock me across the jaw, cursing me for ever worrying you about her in the first place. But that's how she is. She's wonderful, she's wonderful, she's wonderful, and then she's not. Living with her is like touring the world's museums, with every 14th painting  replaced by a fist in the gut.

So now the great medicine quest continues. We're a team of chefs surrounding the pot of Kathryn's brain, trying to find the right combination of herbs to eliminate the acrid aftertaste of an otherwise perfect soup. (Look at me tonight, being all metaphory. Must be the wisdom of my newfound age.) The latest drug cocktail is a hopeful one, but it will take months to affect any change, so we are bracing ourselves here for a wild seizure-ridden ride. And I'm taking you all along with us. Oh, lucky you.

But for now, we are going someplace you can't, or at least shouldn't: Texas. Tomorrow the girls and I fly to Texas to spend a few weeks at my parent's house. We will be joined on the flight by my mother, who was a last minute addition to the plane's passenger list. She's not seated anywhere near my daughters or me, but something tells me there will be no shortage of volunteers eager to switch seats with her. Especially once Victoria starts singing.

July 19, 2008

I'm the Less Melodramatic One

Hi All. The Mom here.

Today I convinced my husband spend a day with his family rather than blog about it. He was not happy, saying something about you guys liking him more than we do, which is probably true, but didn’t carry a lot of weight with me. In exchange, I promised I’d write an update about Kathryn.

Kathryn is same as she ever was, just extra sparky. Actually, the neurologist calls them spikes, not sparks. The takeaway of the testing is this: It’s still Rolandic Epilepsy which is good news. The bad news is, according to the doctor, in the same time frame that most kids with Rolandic Epilepsy have between 3 and 4 spikes showing on their EEG, Kathryn has between 30 and 50. She’s starting new medicines and we hope to get the spikes under control, but the immediate prognosis is that it’s going to get worse before it gets better.

But as we all know from the 80s, spiky is cool but won’t always be around.

BTW: Monday is Brian's birthday. So keep him in your thoughts as he heads into his twilight years.

July 18, 2008

This Post Would Work Better as a Tweet

Kathryn's back home. I'll write an update after I sleep the next twelve hours.

July 17, 2008

Testing, Testing

I've begun this post seventeen different ways and all of them sucked. Actually one of them didn't, but I abandoned it anyway because it didn't meet even the low standards of good taste that this blog maintains, plus it featured a grotesque illustration I found of how doctors treated epilepsy in the Middle Ages (Answer: Poorly). Beginning it this way sucks, too, but at least the post has begun, so let's move on. I bet the ending will suck, too.

Kathryn is back in the hospital, for a three-day stay of tests and observation. The seizures are proving to be more wily than the medicines she is taking, and so they have brought her in to glue twenty-four electrodes all over her tiny blonde head and see if they can figure out why. A twenty-fifth electrode goes over her heart.

The seizures are getting longer and stronger. Last Sunday, in heavy traffic on the Garden State Parkway, I looked in my rearview mirror to see Kathryn twitching and jerking, seatbelted into her seat. My wife spun around, but the only assistance she could lend was to swipe at the spittle coming from Kathryn's mouth as she threw her head around, a horse fighting its rider. The seizure lasted longer than any we'd seen before, and it left Kathryn wasted, spent, and sick for the rest of the day and long into the next.

It's been only nine months since these seizures have entered our lives. They have stopped being funny. Right now, everything has stopped being funny.

Well, everything except this.

Sleep eludes Kathryn. Or maybe it's Kathryn who eludes sleep. She fights it as she always has, but now when she wakes, she immediately stakes her claim to the day, even when "day" is still several hours away.  Not that I can blame her. How can someone sleep when they know it brings the seizures? But yet it's tiredness, more than anything, which triggers them during the day. Catch-22. Like if eating chocolate made you fat, but eschewing it made you fatter.

Sleep doesn't come any easier to the rest of us. It's 2:17 AM. I've opened and shut this laptop so often in the past three hours, I fear its hinge will soon fail. The same goes for the switch on the bedside lamp. The house is still and quiet, and still sleep won't come.

But the end of this post will. And it will suck just as much as the beginning did.

See?

May 15, 2008

Mountain Climbing

This is not an epilepsy blog. This will not be an epilepsy blog. This blog will continue to be what it has always been: a puking blog.

But...

The seizures keep coming.

On the day her doctor said Kathryn had epilepsy, I could easily have kissed her full on the mouth. I had heard of epilepsy; I knew what it was. It was so much less scary than what I thought we were facing. And her doctor was super hot.

At that point, Kathryn had had two seizures. The first one came and went in the middle of the night. By the morning, it was easy to dismiss. The next one landed her in the hospital for three days. But still, two seizures in two years? Piece of cake. Throw in a daily dose of anti-seizure medicine for good measure, and I was sure we would be in for smooth sailing.

The seizures keep coming.

There were more last night, even after we increased her medicine. Two in a row. And longer. So we increased her medicine again this morning. And now I am scared. I am scared that what we have seen in the past were the foothills, little seizure bumps in the landscape, hills that we crossed easily before finding ourselves climbing Mt. Epilepsy. And thinking about Mt. Epilepsy scares me to the pit of my stomach.

And it makes me want to puke. (See? A puking blog!)

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